About Lymphangiomatosis

Is a little known disease that strikes infants, children, and adults and does not discriminate against genders. It is not known how many people have LYMF, and as it is not understood nor recognized by the majority of the medical community - is certainly misdiagnosed as other diseases.

The goal of the LYMF Foundation is to become the global "home" for patients diagnosed with LYMF, the physicians treating those patients, and researchers and scientists interested in learning more about this disease, how it affects different patients, and find effective treatments and potential cures for LYMF.

LYMF does not affect all patients equally. What we have learned over the past 2 years is that there are patients who are diganosed as children and live to adulthood with varying degrees of symptoms and limitations. The greatest concerns are for the infants, toddlers, adolescents, and adults who are failing to thrive. The most urgent need for the research to accelerate is for those who are losing their battle with this horrible disease.

The percentage of patients who die from LYMF is unknown - but as the stories of children who suffer and succumb to the disease before they have any chance of growing up should tell the scientific community that it is time to step up and put their heads together and work together to save them.